Am I Aspie or Autistic?

‘Am I Aspie or Autistic?’ Is a podcast mini series devoted to sharing the findings from a study by Olivia Smith and Sandra Jones (2020) on experiences of people with an Aspergers Diagnosis after DSM-5 changed it to Autism Spectrum Disorder. Made by psychology graduate, autism researcher and podcaster Joana Simmons, this mini-series zooms in on the DSM, disability identity, neurodiversity and speaks directly to the experience of those folks who were diagnosed with Asperger’s, now ASD, to understand their responses and how it impacted their identity.

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Episodes

Monday Aug 29, 2022

This episode introduces the podcast mini-series, including why this podcast is being made, how, with who and explains terminology that will be used in the series.  Write to us to let you know what you think: autism@acu.edu.au - This series is based upon "Coming Out with Autism" (Smith & Jones, 2020) https://link.springer.com/article/10.1007/s10803-019-04294-5   Written, recorded and edited by Joana Simmons as part of the Australian Catholic University Winter Research Program. - References for studies mentioned in this episode: Forber-Pratt, A. J., & Zape, M. P. (2017). Disability identity development model: Voices from the ADA-generation. Disability and Health Journal, 10, 350–355. https://doi.org/10.1016/j. dhjo.2016.12.013.   Gill, C. J. (1997). Four types of integration in disability identity development. Journal of Vocational Rehabilitation, 9, 39–46. https:// doi.org/10.1016/S1052-2263(97)00020-2.   Mogensen, L., & Mason, J. (2015). The meaning of a label for teenagers negotiating identity: Experiences with autism spectrum disorder. Sociology of Health & Illness, 37, 255–269. https://doi. org/10.1111/1467-9566.12208.

Monday Aug 29, 2022

This episode covers a brief history of the DSM- Diagnostic and Statistical Manual and the progression of the neurodiversity known as ASD.  We discuss what it is to have or identity with any kind of label, advantages and disadvantages.  Write to us to let you know what you think: autism@acu.edu.au -  This series is based upon "Coming Out with Autism" (Smith & Jones, 2020) https://link.springer.com/article/10.1007/s10803-019-04294-5   Written, recorded and edited by Joana Simmons as part of the Australian Catholic University Winter Research Program. - References for other studies used in this episode Chambers, Murray, C. M., Boden, Z. V. R., & Kelly, M. P. (2020). “Sometimes labels need to exist”: exploring how young adults with Asperger’s syndrome perceive its removal from the Diagnostic and Statistical Manual of Mental Disorders fifth edition. Disability & Society, 35(4), 589–608. https://doi.org/10.1080/09687599.2019.1649121   Mogensen, & Mason, J. (2015). The meaning of a label for teenagers negotiating identity: experiences with autism spectrum disorder. Sociology of Health & Illness, 37(2), 255–269. https://doi.org/10.1111/1467-9566.12208  

Monday Aug 29, 2022

In this episode, we hear the perspectives of those who were supportive of the change to the DSM.  We hear discuss why these folks may have their views, including their age and stage of diagnosis.  To protect confidentiality, their names and voices are not used; the voices you will hear are that of Lincoln Jones and Joana Simmons.  Write to us to let you know what you think: autism@acu.edu.au - This series is based upon "Coming Out with Autism" (Smith & Jones, 2020) https://link.springer.com/article/10.1007/s10803-019-04294-5   Written, recorded and edited by Joana Simmons as part of the Australian Catholic University Winter Research Program. -  

Monday Aug 29, 2022

Extending from last week's episode, we hear from those opposed to the changes in the DSM.  We will hear their perspectives of why they are not so keen on adopting the ASD label and how they heard about and now relate to their diagnosis.  To protect confidentiality, names and voices of participants are not used, you will hear the voices of Lincoln Jones and Joana Simmons If you have any questions or want to reach out, please write to us: autism@acu.edu.au - This series is based upon "Coming Out with Autism" (Smith & Jones, 2020) https://link.springer.com/article/10.1007/s10803-019-04294-5   Written, recorded and edited by Joana Simmons as part of the Australian Catholic University Winter Research Program.

Monday Aug 29, 2022

In this episode we hear from the perspectives of those who had mixed or ambivalent responses toward when the DSM-5 merged the Asperger's diagnosis to become ASD.  To maintain confidentiality, their voices and names are not used; the voices you will hear are those of Lincoln Jones and Joana Simmons.  Feel free to leave a comment, or write to us on autism@acu.edu.au - This series is based upon "Coming Out with Autism" (Smith & Jones, 2020) https://link.springer.com/article/10.1007/s10803-019-04294-5   Written, recorded and edited by Joana Simmons as part of the Australian Catholic University Winter Research Program. - Other studies mentioned in this episode: Giles, D. C. (2014). “DSM-V is taking away our identity”: The reaction of the online community to the proposed changes in the diagnosis of Asperger’s disorder. Health: An Interdisciplinary Journal for the Social Study of Health. Illness and Medicine, 18, 179–195. https://doi.org/10.1177/1363459313488006.

Monday Aug 29, 2022

In this, the final episode, Joana does an overview of what we have covered so far, to reflect and establish that identity is complex. We look at where to from here: the limitations of the current research we have covered, future ways the ground work we have covered could be extended upon and also how this knowledge could be applied in real life.  To contact us, leave a review or write to autism@acu.edu.au - This series is based upon "Coming Out with Autism" (Smith & Jones, 2020) https://link.springer.com/article/10.1007/s10803-019-04294-5   Written, recorded and edited by Joana Simmons as part of the Australian Catholic University Winter Research Program. - This episode also mentions the work of : Chambers, B., Murray, C. M., Boden, Z. V. R., & Kelly, M. P. (2019). ‘Sometimes labels need to exist’: Exploring how young adults with Asperger’s syndrome perceive its. Disability & Society.. https ://doi.org/10.1080/09687599.2019.1649121.    

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